Links to information and other web sites
Please feel free to browse our collection of web links to sites related to Sacha, Batten Disease, or web sites offering support or information.
We try to keep this up-to-date - if you come across any link that is not working please do let us know.
sites related to batten disease
Stem Cell China News :: web site dedicated to giving the latest news on stem cell and related research and treatments in China.
Beike Biotechnology :: Beike Biotechnology's web site. The purpose of this web site is to give you information not only on Beike as a company but also to give information on treatments available to patients outside of China.
UCL Institute of Child Health :: the joint website of Great Ormond Street Hospital for Children NHS Trust (GOSH) and UCL Institute of Child Health (ICH).
BDFA - Batten Disease Family Association : the Batten Disease Family Association (BDFA) was created in 1998 to support and help families, carers and professionals, who have contact with a child with Batten disease.
BDSRA - Batten Disease Support and Research Association - (BDSRA) was formed in July, 1986, by Gary and Judith Grant of Spanaway, Washington, who are parents of three Batten victims.
media reports related to sacha
Brave girl's flight of hope to China :: Newsquest Media Group Newspapers - 19 July 2006
Stem cell treatment for ill girl :: BBC News - . Monday, 28 August 2006
Brave Sacha's fight for hope :: The Argus - Monday 4th September 2006.
Pioneering stem cell treatment gives family hope :: The Argus - Tuesday 19th September 2006
So many people have offered time and energy to support Sacha we have made a 'big' thank you page. Do tell us if we have missed you off the list!