Recent Thank You List - updated 18.11.07
Auction night at Lingfield - Neil writes, "The night was excellent!.. What a great achievement in just over a months planning. I must say a huge thank you to Graham/GP Road show & Sarah, Pat & Pauline, Peter McKye & all the staff at The Victoria Club for all of their hard work to create such a great event for Sacha.
Graham & Sarah put on a great night and with help from auctioneer Peter
McKye and a guest appearance by Radio
Mercury’s Chris Oxlade, raised over £2850 with both the raffle and auction
combined. A friend of mine that works at Tottenham Hotspur FC managed to get me a
signed shirt to auction off, amongst many
fantastic items including two flight tickets anywhere in Europe.
Every penny helps Sacha’s survival and with this wealth of kindness towards us we can only hope for a better future in the way of trying to fight this fatal disease.Even though the odds are against us not losing our lovely daughter, we still believe there is hope, if we have to travel around the world – then that’s what it will take.
The worst part of being a father is being incapable of helping or saving
your child when they are dying each day
right in front of you.
There is no cure and limited funding to find one, as unfortunately for us
this is such a rare disease.
China is our only hope at the moment. We kind of know what to expect – not a
miracle but enough to see a change for
the good in her. The potential is great if the stem cells populate and
replace the dying cells, although this would
be ideal, her disease is always going to fight back and is likely to take
her away from us one day.If stem cells are the way forward in treating Battens Disease, Sacha is
playing an important part for future
developments.
We have to give her a chance, to give her back what she has given us."
The very big Thank You List
Sacha and her Family would like to say thank you to the following people and organisations in alphabetical order - apologies if I have missed anyone from this list – you are not forgotten. Annette
Adele
Alex Hose
Alexandra Antoniades
Amanda Deverick
Amanda Wellby and family
Andrew Pearce
Andy Duffy
Ann Salman
Anna Francombe
Batten Disease Family Association
Berni Adamic
BDSRA
Beth Collins
Brighton Health & Racquet Club
Castledean School esp. Irene & Sue
Catherine Mackmurdo (for climbing Mount Kenya for Sacha)
Cecelia Carroll (for running The London Marathon for Sacha) - see pics
Charlotte & Hannah
Charmain Hartwell
China Stem Cell News esp. Jon & Sunny
Christina Kimbrough
Claudette Griffin
Clive Lambert
Cornell University, New York and their team
Dan Marsden
Dave Metcalfe
Dave Spendley
Dominic Cook
Dominic Smith
Dom & Alex
Duke of York’s Cinema
Duncan
Esmine and Alaina Allen (my mum and sister for being with all the way)
Felicity and Dave Dyter
Fiona Matthews
Fiona Matthews and her family
Flight Centre Brighton
Funplex
Future Vision Training
Gemma Firth
GemX Software
Geoff Mackmurdo
Glenn Bracey
Glenn Lillywhite
Graham Pearson
Graham and Sarah
Gusto Pronto Brighton
Hastings Family
Hilary Mackmurdo
Hillside School esp. Elizabeth Wood & Bob Wall
Hoo and Brian Rayfield
Inchcape Shipping Services
Indra Beauty
IT Ambulance
Ivy Press
James Baxter
Jason and Lara Geall
Jason Rolf
Jenny Carter and her family in Canada
Johnathan Roughton
Justine Dewey
Kate, Deb and James in Oz
Lilly Worth
Lily & Fay
Linney Print
Lizzie & Rosie Dutch.
Loot London
Louise James
Lucy Dyer
Luke Rees
Martin & Naz
Maxine Poole
Melanie Bracey
Michelle & Michael
Michelle Lee
Middle Street School esp. Julie & the nursery staff
Mike Warne
MSC (UK) Ltd
Myles Phago
Nadia Ventner
Natalie
Neal Lewis
Nikki
OSTC Bromley Office
Pat
Pauline and family
Pete & Rachel Griffiths for endless love and support
Philippa Vafadari & family
Polly & Mike Dyer
Rebecca and family
Richard Ash
Rizwan Omar
Sally Winfield
Sam Baker
Sarah Bracey
Sharon Reilly and family
Sonia Heyworth
Steve, Louise, India, Tyler and Callum Cook
Steve Usher
The Argus Brighton
The people and doctors in Shenyang, China
The Rim**** Usual Suspects (you know who you are!)
The Skinner & Norris family
Tim Pilcher
Tina at Keil-Software
Tonia Ibrahim
Ulrika and her family and carers in Sweden
Weatherstone Properties
So many people have offered time and energy to support Sacha we have made a 'big' thank you page. Do tell us if we have missed you off the list!